11-Month-Old Baby braves Serious Brain Ailment, Odd Head Shape led to Diagnosis

Little did Boler and her husband Michael know that the joy of the arrival of their second baby will soon be marred by a shocking revelation. The baby born with an odd head shape was diagnosed at two months with a serious condition that hampers the normal development of the baby's brain. Thankfully, kudos to the medical expertise, Matthew is today a healthy 11-month-old baby.

Matthew's, with an oddly-shaped, large and round head was diagnosed as having 'Craniosynostosis', a birth defect in which one or more of the joints between the bones of a baby's skull prematurely fuse together.

Megan Boler remarked, "I was completely shocked and overwhelmed. It felt like the world stopped for a moment. When the doctor said 'craniosynostosis,' that word in itself is very scary".

Sandi K. Lam, MD, is Director of Craniofacial Surgery Program at Texas Children's Hospital treated Matthews. The doctor explained that a normal baby's skull is made up of different plates of bones that come together at the joints or sutures.

Lam added, "They're open when the baby is born to allow the brain to grow. Over the first two years in life, there is a lot of rapid brain growth, and if any of the sutures are fused at that time, it doesn't allow the brain and skull to grow properly".

The doctor undertook corrective surgeries on Matthews who was then made to wear a helmet 23 hours a day for the next four months, as it would help to guide the reshaping of his head.

Boler has taken up the task of spreading awareness and is alerting other parents to the condition by narrating her story.